About Me - I have a rare and incurable progressive muscle disease. I was diagnosed with
a form of Limb-Girdle Muscular Dystrophy, type 2E after two previous misdiagnoses of Polymyositis and a trait of Duchenne Muscular Dystrophy. The onset of my symptoms surfaced in 1996, and for the most part, has been slowly progressing, although not without challenges. To keep things very transparent, every day is a challenge, and yet a blessing that I get to see another day and do my part to be a blessing to others.
Introduce Myself - I have a muscle condition that impacts my life, but it is not who I am. So, allow me to introduce myself. My name is Tomeca M. Goodwin, and I was born, raised, and still reside in Cincinnati, OH. I entered this world in January of 1974, and I am here by God’s grace, mercy and fervent prayers. I have worked for the same company since 1992. I have a healthy sense of humor and enjoy a good laugh, even if it is at myself. I love spending time with friends and family, reading, trying new recipes, traveling, crafts, shopping and listening to different genres of music.
Purpose For Blog - This blog was created to
open the discussion of invisible and visible dis-
abilities, as well as rare diseases. To bring awareness,
educate, share stories, explore resources, answer
questions, and give a better understanding of the
challenges that people with disabilities face daily.
It’s also here to encourage, inspire, and support
people in all stages of their life’s journey.
My Story - I can remember back to when I was
in my early teens, and I would experience random
muscle cramps that felt as though my leg muscles were twisting. Months prior to my first incorrect diagnosis, while I was in my early twenties, I remember having leg weakness and my knee hyperextending badly. However, before all of this started to happen, I was the one that loved to dance, roller skate, race barefoot in the street, and climbed stairs two at a time. I did what most would consider to be normal thoughtless actions. The onset of my condition came during an extremely stressful time in my life. Since then, my life has essentially been a perpetual shift. I adjust, re-learn, and do things differently day to day, week to week, month to month, and year to year. I can close my eyes and remember how I used to do things like it was yesterday, and not 25 years ago. I know that I am not alone in what I have experienced over the years, nor am I alone in my position on how people with disabilities are treated in our society. I would like to have some hard conversations, share some inspiring stories, and bring awareness to the masses that people with disabilities are not just people that use wheelchairs, walkers, canes, and have prostatic prosthetic limbs. Many are the Invisibly- Visible people that are hidden in plain sight.
Subscribe and join the conversation, click the link below.